Well, we went to the sleep Doc Yesterday and L has to go into the hospital for a few days. Those test came back as Autosomal dominant nocturnal frontal lobe epilepsy… It’s not good… A Messed up Gene on Chromosome 20 I’m told.
That on top of her sleep Apena and CPAP machine she has to use at night to stay breathing. The day before, the dentist told us L has cells in a tooth. That is wicked rare and they are trying to save her tooth and gums. It’s a one in one million chance of her getting it at no fault of her own, it’s just a fluke thing…
Please, if you pray? Please pray for L?
We’re moving next Sat.. closer to the hospital in Boston..
Hope all is well with everyone!
XXX
-D
I’ll be thinking of you both! I hope that the move goes okay.
Take care! xx
Try not to worry!
Go easy and I hope the move goes ok
xxx